During these challenging times, it’s vital for families, carers and healthcare professionals to have access to the best possible information about how to deal with the double whammy of dementia and Covid-19.
As the organisers of the UK’s leading event for Alzheimer’s and dementia, The Alzheimer’s Show has developed strong partnerships with the leading specialist charities and organisations in the field. In collaboration with them, we’re delighted to now be able to bring you a series of FREE webinars – packed with useful advice and practical tips you can use during the pandemic and beyond. Plus you’ll have the opportunity to put your own questions to the carefully selected experts and specialists.
The Alzheimer’s Show Webinars
Starting Thursday 09 July, we’ll be providing a series of FREE webinars on a range of topics relevant to everyone affected by Alzheimer’s and dementia – whether you’re a carer, family member, or healthcare professional. Each webinar will also include plenty of time for questions – giving you the opportunity to receive expert, specialist advice regarding your specific situation.
Don’t worry if you can’t attend the live webinar – a recording will be made available to everyone who registers
Thursday 9th July 11:00 – 12:00 Dementia Care and Covid-19 – Advice and support during the pandemic.
Victoria Lyons and Caroline Woodcock, Admiral Nurse Helpline, Dementia UK The session will focus on the issues affecting people with dementia and their families around COVID and focus on what practical support Dementia UK can offer. Find out more and register
Friday 24th July 11:00 – 12:00 Alzheimer’s and Gum Disease: Clinical Trials in 2020.
Dr Stuart Ratcliffe, Chief Scientific Officer and Megan Young, Patient Engagement Coordinator This session will explore what it’s like to take part in clinical trials for Alzheimer’s disease, and will focus on an exciting new clinical trial investigating the link between bacteria in the gums and Alzheimer’s disease. Find out more and register
Thursday 30th July 11:00 – 11:45 Your Guide to Dementia: How to Stay at Home With the Right Dementia Care.
Jayne Vale. Expert Dementia Carer Trainer, Helping Hands Home Care Independence. It’s something that many of us take for granted. Explore how focussing on enablement can allow someone with dementia to continue living in the home they know and love, with comfort, safety and independence. Find out more and register
Thursday 6th August 11:00 – 12:00 Prevention of Alzheimer’s Disease – understanding how this may be possible through the introduction of new medications.
Dr Emer MacSweeney, CEO and Consultant Neuroradiologist at Re:Cognition Health Recent results from international clinical trials testing new medications, designed to slow down or ideally stop progression of Alzheimer’s symptoms, may be on the market sooner than previously expected. Understand how these medications work and the opportunities available, to access, today, tomorrow’s treatments, designed to prevent the progression of symptoms of Alzheimer’s. Find out more and register
Thursday 13th August 11:00 – 12:00 Out and About with Dementia Adventure.
Debbie Anderson, Project Coordinator – Training, Research, Consultancy, Dementia Adventure Getting outdoors and engaging with the natural environment is good for all of us. Evidence shows it can also be hugely beneficial for people living with dementia. Things may have changed recently, but the importance of connection to nature and access to green space remains just as important. Join us on this webinar, where we will share some of the research which may help you to live better with dementia. Find out more and register
Thursday 20th August 11:00 – 12:00 Legal considerations when diagnosed with Dementia.
Andrew Robertson, Managing Director, McClure Solicitors McClure Solicitors will talk about advice and support your Solicitor can offer to help clients diagnosed with Dementia, including Wills, Powers of Attorney, Trusts, Deputyship, Council Tax, Funerals, and Probate. Find out more and register
MyMarathon is a challenge to complete 26.2 miles in any way that suits you. Whether these are the first miles you’ve ever run, you’re a regular runner, or you decide you’d rather walk it, as long as you cover 26.2 miles you’ll be a MyMarathon champion.
During this time, it’s vital for your physical and mental wellbeing to keep active. Run a marathon over a period of days or weeks, in a safe place, that suits you, and help to raise funds for the British Heart Foundation‘s life saving research.
Commenting on the evolving coronavirus pandemic, Dorry McLaughlin, Chief Executive at Scottish Autism, said: “As a charity that provides support and services for autistic people and their families in communities throughout Scotland, we believe it is essential to introduce measures aimed at minimising the spread of the coronavirus pandemic.
“This includes making hand sanitisers available across all of our services and providing thermometers for all staff so they can monitor the temperatures of those we support as well as our colleagues should they have any health- related concerns.
“We have asked staff members to avoid attending public events in large groups to reduce the risk of several colleagues becoming infected and off their work simultaneously. Following the excellent advice available via NHS Inform, we are asking any colleagues who have developed a cough or fever in the past seven days to self-isolate for seven days. We have also reminded all colleagues of the Government health guidelines around coronavirus, notably about hand-washing and the 111 emergency hotline.
“By introducing these precautionary measures, Scottish Autism aims to continue delivering services and support across the country as usual. Carefully following NHS and Government advice, we will be keeping colleagues, those we support and their families updated with new information on the situation as it emerges. “At what is becoming an increasingly anxious time for many, we will continue to do everything we can to keep our staff, the people we support and other stakeholders as safe as possible.”
Published: 23rd March 2020
Source: Scottish Autism – 23.03.20 Covid-19 update and new information resources
Information Resources for Autistic People & Those Who Support Them During The Pandemic
The COVID-19 pandemic is a new virus, which is impacting everyone’s lives, including autistic people and their families. Scottish Autism have created some information resources about COVID-19 that they hope you will find useful at this challenging time.
Providing meaningful information on all things autism.
Scottish Autism recognises that access to reliable and useful information is critical for autistic individuals, their families and involved professionals.
They are continuously developing information resources on a range of day to day topics and issues. Their information development is based on their knowledge and understanding of the common challenges that arise for people. This is informed by the nature of the many enquiries made to the Autism Advice Line.
In addition to web based information, Scottish Autism autism advisors are happy to discuss individual situations and where possible will provide bespoke information and advice. To speak to an advisor directly, please contact the advice line.
If you are looking for help explaining Coronavirus to your relative or the person you support, click here:
The Age UK network includes Age Scotland, Age Cymru and Age NI and more than 130 local Age UKs throughout England. Together, they provide a wide range of services to help people in later life throughout the UK.
MS Awareness Week 2020
MS Awareness Week 2020 will run from 20-26 April. It’s a chance to raise awareness of multiple sclerosis, and the reality of living with it. #MSWeek.
Most people have a vague idea what MS is, but lots of them are a bit confused. Some people know it causes problems with how we move. But what about how we feel? And the symptoms you can’t see? For MS Awareness Week, let’s help everyone understand exactly what MS is like.
How do I get involved?
There are lots of ways to get involved:
download and share the graphics on your social media accounts to help describe your symptoms in 5 words (or more!) using the hashtags #ThisIsMS and #MSin5Words
Specially-Trained Dogs will Help Find People Living with Dementia and Other Conditions
SEARCH Dog Heroes are poised to track down vulnerable missing people and bring them home as part of a ground-breaking £1m project launched today.
The life-saving initiative, a partnership between charities Missing People and Lowland Rescue, will use the specially-trained dogs to help find people living with dementia and other conditions that could put them at high risk of harm when they go missing.
It is being rolled out across England, the Channel Islands and Northern Ireland, thanks to players of People’s Postcode Lottery through the Postcode Dream Fund.
The first dogs, who can follow the scent of a vulnerable missing person, have entered into service in Berkshire and Jersey this week, with more coming online, and rolling out across the wider country in the coming months.
Once the dogs and handlers are qualified, the police can use them as part of the search for a vulnerable missing person.
Dog handler and Lowland Rescue volunteer Michelle Bouchard, of St Peter, Jersey, whose dog Peggy is one of two dogs who have completed the training, said:
“Peggy is a little bit shy, but the training gave her confidence, and she really took to it.
“It’s a real honour to be part of this, and we are hoping that it inspires many more people to get involved.”
Jo Armstrong and her dog Roo have also completed the training. They are based in Berkshire and have already taken part in a search, within 48 hours of being made operational.
Roo supported a successful search for someone thought to be missing from a care home.
Missing People and Lowland Rescue have developed scent kits, which allow the carers or relatives of vulnerable people to collect the scent of the person and store it securely.
The trailing search dogs, trained by Lowland Rescue, can use the scent to track down the missing person quickly, to reduce the risk of them coming to harm. Someone living with dementia goes missing every five hours in the UK.
Laura Chow, Head of Charities at People’s Postcode Lottery, said: “I am delighted to see Dream Fund project ‘Search Dog Heroes’ officially launch. We are very excited to see the trained dogs working to bring people home thanks to the charities our players support, Missing People and Lowland Rescue. At People’s Postcode Lottery we aim to enable charities to come together and work collaboratively on fantastic projects like this.
“We hope that Search Dog Heroes will be an invaluable resource to help find missing vulnerable people, such as those living with dementia or a learning disability and bring peace of mind for their carers.”
Lowland Rescue Chairman, Gareth Pritchard – QPM, said: “We are really pleased that we now have two dogs trained and ready to go out into their communities and find vulnerable people. At Lowland Rescue our specially-trained professional volunteers are regularly on the front line working alongside the police searching for people who have disappeared and this is a valuable extension to our search assets. It has been fantastic to work with Missing People on this project which has the potential to help our teams save even more lives, and we are grateful to People’s Postcode Lottery Dream Fund who have made it all possible.”
Missing People CEO Jo Youle said: “With someone going missing in the UK every 90 seconds, and vulnerable people being particularly at risk, we are hoping that the launch of our scent kits and the training of our search dogs will make a real difference to people’s lives. Thanks to the support of players of People’s Postcode Lottery, carers of vulnerable people will be able to act fast if a loved one goes missing.
“Someone living with dementia is reported missing every five hours, and 1,800 disappear every year. Missing People and Lowland Rescue aim to use search dogs to save lives.”
Celebrities Recreate Iconic Movie Scenes for Dementia UK’s Time for a Cuppa Campaign
Taking place from 1st – 8th March 2020, Time for a Cuppa encourages friends, families, and colleagues to come together and host a tea party – whilst raising vital funds for Dementia UK, a charity that provides specialist dementia support for families through its Admiral Nurse service.
To raise awareness of this year’s fundraiser, five British celebrities whose families have been affected by dementia – including Downtown Abbey actress, Phyllis Logan, EastEnders actress and Strictly Come Dancing star, Emma Barton, DJ and record producer, Shahid Khan (Naughty Boy), TOWIE starlet, Jess Wright, and her younger sister Natalya Wright – have recreated some of the most tea-rrific moments in movie history.
Emma Barton, who posed as singer-songwriter Holly Golightly from Breakfast at Tiffany’s, said:
“I’m thrilled to be a part of the ‘Time for a Cuppa’ campaign in memory of my great uncle who died from dementia.
“Not only do I get to dress up as my hero, Audrey, but the campaign will help to raise vital funds for Dementia UK and show all affected with dementia how incredible our Admiral Nurses are.
“Time for a Cuppa is a fun way to raise money with family, friends and colleagues, so I encourage everyone looking to make a difference to take part. Who doesn’t like to go to a tea party?”
Phyllis Logan, who featured as the magical nanny, Mary Poppins, said:
“I’m always eager to promote and support Dementia UK, so I was delighted to feature in their ‘celebri-tea movie moments’ photoshoot as everyone’s favourite nanny, Mary Poppins.
“As an Ambassador for the charity, I take part in the ‘Time for a Cuppa’ campaign every year – with a spoonful of sugar in my tea naturally!”
Naughty Boy, who dressed as 1920’s millionaire, Jay Gatsby, said:
“I wanted to get involved in Dementia UK’s Time for a Cuppa campaign as soon as I heard about it. My mum is living with dementia, so I’m eager to use my own experience to help people to better understand the condition and how it can be managed.
“Dementia is something that could happen in anyone’s family, and I want people to know that there’s a musician out there called Naughty Boy who’s going through the same thing as them. The more people come together to talk about the condition, the more they will be able to help each other.”
Jess Wright, who was photographed as Alice from Alice in Wonderland, said:
“We have a history of dementia in our family, so knowing that there is specialist nursing care out there to support those living with the condition is so reassuring.
“‘Time for a Cuppa’ is a brilliant excuse to drink tea and catch up with family, friends and colleagues, whilst raising money for an amazing cause – so I was delighted when Natalya and I were invited to lend our support to this year’s campaign.”
Natalya Wright, who starred alongside her sister at the Queen of Hearts, said:
“Jess and I are both big Disney fans, so when we heard that Dementia UK was looking for an Alice and a Queen of Hearts to feature in their Time for a Cuppa campaign, we jumped at the chance to take part.
“The charity’s specialist Admiral Nurses can have such a positive impact on people’s lives when they are living with dementia, so we hope that our involvement will help to raise further awareness of the campaign – and encourage people to host a tea party with their family and friends in support!”
Dementia UK is the only charity caring for people with dementia and their families through dementia specialist Admiral Nurses. The charity currently has 282 Admiral Nurses working across various care settings, including out in the community, care homes, hospitals and hospices. It also has an Admiral Nurse Dementia Helpline which is available to anyone with any questions around dementia via phone or email.
Every cake baked, every cuppa made, and every pound raised will allow the charity’s specialist Admiral Nurses to continue working alongside people with dementia and their families: giving the compassionate one-to-one support, expert guidance and practical solutions that can be difficult to find elsewhere.
Dr Hilda Hayo, Chief Admiral Nurse and CEO of Dementia UK, said:
“We are incredibly grateful to all our celebrity supporters for helping us to recreate some of our favourite tea scenes from movies; helping to raise awareness of this years’ Time for a Cuppa campaign.
“Dementia is an isolating condition which is going to affect more and more people. This is what makes our ‘Time for a Cuppa’ event so special as family, friends and colleagues can come together to talk about people they may have lost to dementia, or even be there for someone who is living with it right now.
“However, families need specialist support too. This is what our Admiral Nurses adeptly provide but we urgently need more of them so that we can be there for every family with dementia. We are so grateful to everyone who has made Time for a Cuppa over the years and who are planning to this year.”
Time for a Cuppa runs from 1st to the 8th of March, but you can hold a tea party at any time. Order your fundraising pack at www.dementiauk.org/timeforacuppa today!
Charity Appointed to Develop Autism Accessible Environment at the New Barclays Glasgow Campus
Scottish Autism has announced a two year partnership project with Barclays to develop an inclusive and accessible environment for autistic employees at its new site in the heart of Glasgow.
The charity, Scotland’s largest provider of autism-specific services and a leading authority and advocate for good autism practice, was invited by Barclays to support their aims of promoting diversity at the new Glasgow campus. The bank’s investment will create up to 2,500 new jobs.
Scottish Autism’s Practice Development Manager Joanna Panese, an experienced practitioner and leader, has been appointed as Scottish Autism’s lead consultant on the project. She has over 12 years’ experience within the third sector through direct practice, service development and management roles.
Joanna and her team of specialist autism advisors will be on hand throughout the project providing advice and support on best practice when creating accessible environments for autistic people. The team are currently supporting the project team at the design and development stage of the build. This included advising on practical matters such as the type of flooring and materials that support an inclusive environment. Joanna will be working closely with the Autism Focus Group at Barclays to ensure that the voice of autistic employees is heard throughout the project, and that they are able to inform the development of an inclusive and accessible working environment.
Commenting on the partnership, Charlene Tait, Deputy CEO at Scottish Autism, said: “We’re delighted to be working alongside Barclays to support its aim of creating a welcoming, accessible and inclusive culture for not only autistic employees, but employees from all backgrounds, at the new Glasgow campus. This new site will not only have a significant economic impact for Scotland, it will also provide an important employment opportunity for employees from a diverse background who often face barriers into work, including autistic individuals and those with disabilities.
“Led by Joanna and her team, autistic people will be at the very heart of this project and we have developed our training and consultancy service to support other businesses committed to being an inclusive employer.”
Scott Stewart, Head of Barclays Scotland said:
“We are delighted to be working with Scottish Autism at this exciting time for Barclays. As we double our headcount in Scotland we want to do this in a way that attracts, retains and develops the best talent. The design of the campus is crucial in this respect.
“As an employer, we are committed to working collaboratively to share best practices to remove barriers to employment. Our proactive approach towards disability and mental health has had a positive effect on our organisational culture, opened up a wider talent pool and created opportunities for people of all abilities to join us, grow and fulfil their potential.
At Barclays, our ambition is to become one of the most accessible and inclusive companies in the world, not only because it makes good commercial sense, but because it’s the right thing to do.”
Parkinson’s UK Awarded National Lottery Grant to Enhance Digital Support
People with Parkinson’s and their families and carers will benefit from a £480,000 National Lottery grant for charity, Parkinson’s UK. The grant will help the charity transform the way it supports people affected by the condition by enhancing its digital support services.
Parkinson’s is a progressive neurological condition for which there is currently no cure. Around 145,000 people in the UK have Parkinson’s, and two people are diagnosed every hour.
Parkinson’s is complex and affects everyone differently so it is essential that the right support is available at the right time for every individual.
The grant will ensure Parkinson’s UK’s services prioritise reaching people at the crucial time of diagnosis and continue to offer individuals and their families and carers, both reactive and proactive support throughout the rest of their life.
The funding from the National Lottery will also ensure the charity can maximise its support services to do this, enabling people to better manage their condition and feel empowered to live well with Parkinson’s.
The project, called ‘Parkinson’s Connect’, will have digital service design methods at its centre, making use of pivotal technologies, allowing greater scale and presence of digital technologies in the increasingly tech-savvy Parkinson’s community.
Shirley Jones, Head of Information and Support at Parkinson’s UK, said:
“We are incredibly grateful for this generous grant from the National Lottery that will help us to make a real difference to the growing number of people with Parkinson’s in the UK.
“Ensuring someone is well supported and informed about living with Parkinson’s at the time of diagnosis is vital because it can help them control their symptoms, improve the effectiveness of the medication and enhance their quality of life.
“The money will be used to make our services more agile and effective through enhancing our online and offline support and reach more people at the time of diagnosis.”
John Knights, Senior Head of UK Portfolio at The National Lottery Community Fund, said:
“In a digital society, it’s important that charities and community organisations are not only able to adapt to be fit for the future, but can harness the power of digital to identify new opportunities to improve services to support more people. Now, thanks to National Lottery players, these organisations can increase their digital capacity to have a greater impact in communities and support our sector to thrive in the digital age.”
The Digital Fund was developed through a series of one-to-one interviews and workshops, with the aim to help organisations grow their digital capabilities, particularly around their operations and service delivery. It builds on The National Lottery Community Fund’s previous experience of supporting the voluntary sector’s digital transition, which extends back over a decade.
To find out more visit www.parkinsons.org.uk and www.TNLCommunityFund.org.uk.
Birmingham Sports Festival for Children with Disabilities to Go Ahead in 2020
Sport Birmingham has confirmed the Birmingham Inclusive Sports Festival will go ahead in 2020, offering children with disabilities the chance to take part in sport. The event will enter its eighth year, thanks to a partnership with the CareTech Foundation.
The Birmingham Inclusive Sports Festival offers free fun and family-friendly sports taster days for individuals with a range of impairments. The festival started with 137 participants in 2013 and has grown ever since, with over 500 participants taking part last year.
At the 2019 festival, 84% of those who took part said it had given them the chance to try a new sport for the first time. Aston Villa Football Club was just one of the 25 different providers who offered sports activities at the festival. These included archery, inclusive tennis, wheelchair basketball and table cricket. The event highlighted the importance of inclusivity in sports and was a huge hit amongst those who came.
The CareTech Foundation is an independent grant-making and gift-giving charity, founded and funded by CareTech Holdings Plc, one of the country’s leading providers of specialist care. The foundation donated £2,500 to the event in 2019 and has been confirmed as a partner for the 2020 event.
It is not just those with disabilities who benefit. Parents and carers agreed that the Sports Festival helped to get those they care for to try new things with participants saying more schools and community groups should take part.
One parent commented:
“My son has an LTC (juvenile arthritis) and it was a lovely opportunity to show him you can do anything you want to. He specifically said he thought it was lovely that there were people with all different kinds of disabilities there.”
Jonathan Freeman, Chief Executive of the CareTech Foundation said:
“The Inclusive Sports Festival not only gives people with disabilities the chance to try something new but also helps change preconceptions about what they think that disabled people can do. We were delighted to be able to contribute to the event this year and we are so excited to reaffirm our support for the fantastic work of Sport Birmingham and the inspirational effect they have for the disabled community.”
Amy Bird, Sport Birmingham Senior Partnerships Manager said:
“The Inclusive Sports Festival is a real highlight of our year at Sport Birmingham, and it is such a boost to know that our partners continue to see the good that the event can do. We are thrilled to have the CareTech Foundation as a partner for 2020 and with their help and generosity we want to see the event go from strength to strength next year.”